Saturday, October 23, 2010
National EB Awareness week
Starting tomorrow my Mom and I will be posting everyday to help spread the word about EB. We want people to see how brave EB kids are, we want people to help us find a way to treat Eb, and most of all we want people to see that I am happy living a great life with EB. Everyday we are going to tell you about one way that EB has made our life better. So please come back tomorrow!
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1 comment:
can't wait to read your posts :) - I was trying to post everyday but it's a big challenge- and most of the time I forget or don't have enough time etc. ! so good luck with that :))
Jarka
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