Friday, September 19, 2008

A story about epidermolysis bullosa and me on BYU weekly

A reporter from BYU came to our house and talked to us about eb, because some guys from BYU road their bikes to California to tell people about EB. They were really nice guys, we saw them in Provo and then the next day they came an biked by house. Here is a link to the story they did about eb.

You have to scroll to near the bottom of the page to where it says additional resources and clic on the week of 9/16/2008. Then click on Faces of BYU riding for eb.

This is not the first time I have been on TV. I was on channel 5 when I was 3 and on channel 13 when I was 4 and last year I was on channel 4. I like seeing myself on the TV.

CopyofDSC_0004-1.jpg picture by kadeetroop

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Friday, September 12, 2008

One busy dude

I told my mom that I am one busy dude today. She agreed. We have been running and running around and I hardly have anytime to do all the things I want to do, like play with my friends and play my Wii games. I do have lots of things that I want to talk about though. Most of the things that have been happening are happy, but one sad thing did happen, my Uncle David went to heaven. He is my Dad's big brother and he made my Dad laugh when they were around each other. I think everyone is going to miss Uncle David, but he is in heaven with my Aunt Alisa and some of my eb friends, but I know that I will see them again.

I had a birthday!! I am now 6. I feel like I am a big kid but my mom forgets and calls me her baby.
This is me in the morning of my birthday, my mom takes one of me every year. She also takes one of me in the bath every year but I am not putting that one up. I went to school and got a pencil and got to go to Article circle with my Grandma and Grandpa Troop and my Mom and Dad and Brock.

I got the Wii game that I have been asking and asking for from my Dad and Mom, Lego Indiana Jones. I even got to go bowling with a friend and a few cousins. I use a ramp and bumpers so I get really good scores. At night some of my other cousins came and sang happy birthday to me and brought some treats and I even blew out candles on a cupcake.

Well it is so late and if I don't get to bed then I won't be able to have any stories read to me, but tomarrow I want to talk about a funny thing that I do to my mom.