My Grandma Angie made me new Car's jammies and I love them. I know I am going to sleep very good tonight because they are so comfy and because I got a 90% on my AR test on a book that was a 4.2 (fourth grade book). I love it when I get A's on tests.
I didn't really get into a fight with a bear or a t-rex.
Welcome to my blog! Chances are you came to my blog because you asked what happened to me. Well I need to tell you the truth. I did not get into a fight with a bear or a t-rex. I hope you won't be mad at me for not telling the truth to begin with. It is just that I get asked so often that I get bored of telling people why I wear gauze bandages all over my body. When we go shopping we can expect to get asked 2 or 3 times on average. Somedays nobody asks somedays tons of people ask.
I have a rare skin disorder called Epidermolysis Bullosa. I have the recessive dystrophic form, but we like to shorten it and just call it RDEB. I will give you a very simple explanation of it and if you want to know more (which I hope you do) then you can click on some of the links under the "learn more about EB" section.
EB is a genetic skin disorder. I was born with mutations in the Collagen 7 gene. Collagen 7 is one of many proteins that form "hooks" kind of like velcro, the hooks when healthy hold skin to your body. The Collagen 7 hooks are responsible for holding the dermis to the epidermis. Because I don't have them, friction from everyday activities, like running and jumping and playing cause my skin to separate from my body. When skin separates at the dermis/epidermis layer it forms a wound that is similair to a 3rd degree burn. These wounds are deep and cause serious scarring. Collagen 7 hooks, (the real term is fibril) are also needed in your eyes, mouth and digestive tract. Because I don't have them there either, I often have just as many wounds inside as I do outside.
Yes it hurts, yes I wish it would go away, but it does not hold me back. I am so stronge and I am very brave, and I have eb to thank for that.
Hi, I am Zack I am 8! I love playing video games, soccer, t-ball and hanging out with my many friends and cousins. I live with my Dad and Mom, sister Brently and dogs Cinderella and Olivia. I wanted to get my own blog so I could tell people about my EB (Epidermolysis Bullosa). People are always asking what I got into or how I got burned and my Mom and I sometimes don't feel like explaining it. I think it is fun to tell people I got into a fight with a T-Rex or a bear, but it is probably not nice to lie. And besides, I want others to learn about eb, I want them to be able to understand why I look the way I look and that I am just like everyone else.