I love kite flying but sunday I accidentaly let go of the kite and it flew clear over houses and streets and ended up across the street from my Grandpa Troops. It got all tangled up in power lines so he had to call a man from the power company to come get it down. It was stuck in the wires for a long time and it just flew in the wind the whole time all by itself. It was pretty cool.
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I found you through Jonah's page! My tears are tears of Joy and pain! I have prayed so hard for Jonah and his family. I am so thankful to see there is light at the end of the tunnel. There are good/positive stories from this disease. My pain is to know that your son has to suffer from pain. He is gorgeaous!!!! I hate to see any person suffer especially a child. He looks so delightful and happy. You are good parents and have obviously done a great job with him because you can tell he is so well adjusted to his life!
Hearts and Hugs
Marie
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