You have to scroll to near the bottom of the page to where it says additional resources and clic on the week of 9/16/2008. Then click on Faces of BYU riding for eb.
This is not the first time I have been on TV. I was on channel 5 when I was 3 and on channel 13 when I was 4 and last year I was on channel 4. I like seeing myself on the TV.
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Cool story! Wow Zack how can I get Bianca to ride her tricycle? She’s terrified of it all of a sudden! She was so happy last year when she got it too! =(
Here is a link to more information about the genetics of Epidermolysis Bullosa that was prepared by our genetic counselor and which has links to some useful resources for those dealing with this condition: http://www.accessdna.com/condition/Epidermolysis_Bullosa/134. There is also a phone number listed if you need to speak to a genetic counselor by phone. I hope it helps. Thanks, AccessDNA
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