Jamie has an incredible voice and is such an inspiration. If you have not heard her sing before here is a little sample.
She is such a classy lady.
Saturday, October 10, 2009
Looking forward to this
Jamie has an incredible voice and is such an inspiration. If you have not heard her sing before here is a little sample.
She is such a classy lady.
Friday, October 9, 2009
I need a reminder
Next week they are screening for vision at school and I need to go get Zack's new glasses. This week they did hearing screening and I am proud to say that my child was not one of the children that had to be pulled aside to have their ears cleaned out before they could preform the test.
Oh, and I also need to be reminded that on Monday my baby sister will be celebrating a birthday. Lets see, she is 8 years younger than me and I turned 21 last January so that makes her 13. Yeah that seams right. She is just one of my 4 amazing sisters, she lives around the corner and is expecting her second child. (so maybe we are both a little older than I think) I am so blessed to have sisters who are willing to take such active rolls in the life of my kids (I have a couple of great sister in laws too). Like today when I forgot that it was early out Friday. One of my other sisters called from the school to let me know that I was 15 minutes late, but all was well, Zack was with her. I could not raise my kids with out these special women, that do things almost daily for me and my kids.
Thursday, October 8, 2009
Pack's Pumpkin Patch
Going to Pack's Pumpkin Patch in Farmington is a family tradition for us. Not only do they have pumpkins but they have yummy banana and butternut squashes, and weird squashes that Brad refers to a hemorrhoid squash. (they do look pretty weird) They have a free little maze that my kids love, and a giant corn maze that costs, we just may go back for that one.
Zack was not to sure about his 504 aid last year until he found out that she just so happened to be a Pack. She made it so the kindergarten got to take an extra field trip there. How could you not love a 504 aid that not only comes with a pumpkin patch, but can also get you and extra field trip. Mrs. pack is certainly a keeper.
The kids loved running through the maze hiding from Brad and I. Hiding was easier for Brently than Zack, his giant head poked clear out of the maze. It was sooo funny to watch his head magically float along the top of the hay.
When Brad would catch one of them he would scoop them up (an eb friendly scoop of course) and they would squeal with happiness.
Brad is a pretty great dad. He loves his kids, it shows when he plays with them. It shows by that fact that he is willing to wake up long before the butt crack of dawn (that's what he calls it) and work 13 hours a day, 5 days a week so that we can do fun things, go on fun trips, and enjoy a great home. He values having a mom at home for the kids during the day and I am so thankful that I get to be that mom.
For the 30 or so local blog lurkers (don't worry I lurk plenty, but I really have NO idea who reads this) you should really make a trip out there, it's awesome. And the Pack's are great people. They totally didn't charge us for all the hay that Zack took home stuck to his gauze, and they could have because it was close to an entire bail.
Wednesday, October 7, 2009
Until further notice...
Zack will be turning his blog over to his Momma, the rigors of first grade are quite frankly kicking his booty. He is putting great trust in me and I don't want to let him down, he did however make me sign contract stating that I would not post on certain subjects that might embarass him, incuding but not limited to the name of the girl that I pack and extra treat in his lunch bag for and what he wears when he sleeps. Zack being shyly narcisitic, prefers to be surprised daily by how wonderful he is and prefers to see it in writing. He has given me a list of things he would like people to know about him. First being that he now leads the class in mad minute math tests. (he's proud little nerd)
The picture has nothing to do with the post, but all post need pictures and Zack chose the one of him eating smores, while wearing a rock'n'roll hoody.
Thursday, September 3, 2009
I kissed my 6 year old goodnight tonight...
and in the morning I will be the proud Momma of a 7 year old. Zack asked me what time he was born and he gave me a little attitude when I told him I didn't know, so my reply was, jokingly "I don't know because I wasn't there". His reaction was so true to Zack's personality, he just said "oh ya that's right" and was satisfied. He has such a logical, rational sense about him. (I did find that he was born just before midnight). Zack has so many wonderful things about him, the way he rolls with some pretty hard punches and hops right back up again.
I say this every year, and I will say it again, Zack earns his birthdays and he deserves his birthdays. They are not just a given, every birthday for him is a milestone, and blessing. He asked if I would post for him, because he is so worn out lately. He stared first grade last week and has loved every minute of it! However, by the end of the school day he is wiped out. He is adjusting very well to the scholastic aspect of it, he is bringing home many 100% papers, if he does by chance miss something, it is only one question. Physically he is struggling. I have given him every opportunity to go short days or stay home, but he wants to be there, he wants to learn. What an amazing example of endurance this kid is.
So Zack wanted me to post about a few exciting things that have happened lately. Tonight he got his new Scooter. He thinks it is a super fast luxury bike, in reality it is a wheelchair. It was awesome to see him racing his friends up and down the street tonight. Zack and his friends were weaving back and forth in front of each other and it was like they were all on an equal playing field. For a minute he forgot that he was different from his friends. He is still determined to ride a bike and that is great, but I am so glad that he can be safe and go fast, and be envied by his friends.
When Zack is at school he is often helped out by a 504 paraprofessional, he has two of them, one in the morning and one in the afternoon. They are both amazing women. His morning helper was with him all through kindergarten, she is loved by all the kids in the class. During lunch Zack goes to the health room at school, (not to be called the sick room or the nurses station)after he is done eating in the lunch room. He goes there so that he can be bullus fed through his feeding tube. It is a pretty sweet deal, he gets to lay down for 20 minutes on a comfy bed and relax, I went along the first week of school to train his helper. On the second or third day of school he tells me with all the excitement that he can muster that he is able to tie his shoes. He was so thrilled and had such a sence of accomplishment and I was pretty amazed too. I had tried to teach Zack on several occasions to tie his shoes, but given the state of his little, less than flexible fingers, I didn't think it would ever happen. The kid read at 3.5 who cares if he can tie his shoes, but he proceeded to show me as he laid on his back with his long skinny leg pulled up over his feeding tube. His helper had shown him how to do it in 5 minutes of one day. She knew he could do it and he knew he wanted to, and that was just what it took. Zack now ties anything and everthing he can find.
I am so thankful to be Zack's mom. He is teaching me things on a daily basis that I have been trying to learn whole life. I won't lie, it is hard to wake up at 5:45am and do woundcare for 2 or 3 hours everyday, it down right stinks. I hate it when people say to me in front of Zack "I couldn't do it" or "I don't know how you can stand that" because quite frankly it is an honor. I wish more than anything on this planet that he would not have to endure that, but as long as he is willing to endure I will be happy to do it.
So HAPPY BIRTHDAY you amazing boy!
I say this every year, and I will say it again, Zack earns his birthdays and he deserves his birthdays. They are not just a given, every birthday for him is a milestone, and blessing. He asked if I would post for him, because he is so worn out lately. He stared first grade last week and has loved every minute of it! However, by the end of the school day he is wiped out. He is adjusting very well to the scholastic aspect of it, he is bringing home many 100% papers, if he does by chance miss something, it is only one question. Physically he is struggling. I have given him every opportunity to go short days or stay home, but he wants to be there, he wants to learn. What an amazing example of endurance this kid is.
So Zack wanted me to post about a few exciting things that have happened lately. Tonight he got his new Scooter. He thinks it is a super fast luxury bike, in reality it is a wheelchair. It was awesome to see him racing his friends up and down the street tonight. Zack and his friends were weaving back and forth in front of each other and it was like they were all on an equal playing field. For a minute he forgot that he was different from his friends. He is still determined to ride a bike and that is great, but I am so glad that he can be safe and go fast, and be envied by his friends.
When Zack is at school he is often helped out by a 504 paraprofessional, he has two of them, one in the morning and one in the afternoon. They are both amazing women. His morning helper was with him all through kindergarten, she is loved by all the kids in the class. During lunch Zack goes to the health room at school, (not to be called the sick room or the nurses station)after he is done eating in the lunch room. He goes there so that he can be bullus fed through his feeding tube. It is a pretty sweet deal, he gets to lay down for 20 minutes on a comfy bed and relax, I went along the first week of school to train his helper. On the second or third day of school he tells me with all the excitement that he can muster that he is able to tie his shoes. He was so thrilled and had such a sence of accomplishment and I was pretty amazed too. I had tried to teach Zack on several occasions to tie his shoes, but given the state of his little, less than flexible fingers, I didn't think it would ever happen. The kid read at 3.5 who cares if he can tie his shoes, but he proceeded to show me as he laid on his back with his long skinny leg pulled up over his feeding tube. His helper had shown him how to do it in 5 minutes of one day. She knew he could do it and he knew he wanted to, and that was just what it took. Zack now ties anything and everthing he can find.
I am so thankful to be Zack's mom. He is teaching me things on a daily basis that I have been trying to learn whole life. I won't lie, it is hard to wake up at 5:45am and do woundcare for 2 or 3 hours everyday, it down right stinks. I hate it when people say to me in front of Zack "I couldn't do it" or "I don't know how you can stand that" because quite frankly it is an honor. I wish more than anything on this planet that he would not have to endure that, but as long as he is willing to endure I will be happy to do it.
So HAPPY BIRTHDAY you amazing boy!
Wednesday, August 12, 2009
Wednesday, August 5, 2009
I'm back
I bet you didn't even know I was gone, I went to Denver yesterday and flew home today. I went to see all of my secial EB doctors. My mom says they are the best doctors in the world for me, or other wise she wouldn't waste the time and money to go there. I got to talk to the Doctor who helps me go to surgery and he is going to help me not be scared when I go back there next thursday for surgery. He is so and and his words sound so cool. My mom says that is how her Granny used to talk, because they were both from England.
I was sad to leave Colorado so soon, I hardly got to play with all of my Moms cousins kids. I did get to see my famous Uncle Colbert on a news show. I a so tired but my Mom said I could write a blog about my trip, and she said I could write one about my next trip and my last trip too.
I was sad to leave Colorado so soon, I hardly got to play with all of my Moms cousins kids. I did get to see my famous Uncle Colbert on a news show. I a so tired but my Mom said I could write a blog about my trip, and she said I could write one about my next trip and my last trip too.
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